Private foundation · EIN 01-0759380 · New York, New York · Education

Spinal Muscular Atrophy Foundation

Should you approach them?

Don't send a cold proposal. The foundation reports that it only gives to preselected organizations; an introduction through a current grantee or board member is the realistic route.

From the 2024 Form 990-PF: 11 grants paid, $1.5M total, median $141K.

Accepts applications
No
per 990-PF Part XV
Grants paid, 2024
11
$1.5M
Median grant
$141K
Stays in NY
—
of grants
Deadline
—
Assets
$50M

Grants paid in 2024

11 grants, all shown · from Form 990-PF Part XV. Part XV itemizes $1.5M; Part I reports $3.1M in contributions paid

RecipientPurposeAmount
John Hopkins UniversityBaltimore, MDCharacterization of gene expression in motor neurons in sma$239K
Swiss Federal Technology Institute of LausanneSZTesting of mitochondrial modulators in sma models$218K
Stanford UniversityPalo Alto, CAGeneration of spinal cord motor neurons from pluripotent cells$207K
University of FloridaGainesville, FLCharacterization of muscle environment in sma$198K
Stanford UniversityPalo Alto, CAOversight on the stanford-sma foundation regenerative medicine program projects$168K
University of EdinburghUKCharacterization of neuromuscular junctions in sma$141K
Stanford UniversityPalo Alto, CACharacterization of neuron-glial-immune cell interactions in sma$117K
Boston Children's HospitalBoston, MATesting therapeutics that promote neuron growth in sma models$99K
Stanford UniversityPalo Alto, CACharacterization of muscle in sma patients$69K
Stanford UniversityPalo Alto, CADevelopment of noninvasive gene editing methods$33K
Muscular Distrophy AssociationChicago, ILSupport of muscle regeneration summit with key muscle experts$2,500

By state: California 5 · INTL 2 · Maryland 1 · Florida 1 · Massachusetts 1 · Illinois 1

About this foundation

Spinal Muscular Atrophy Foundation is a private grantmaking foundation in New York, New York, administered in care of Sma Foundation, tax-exempt since 2003. Private foundations must pay out roughly 5% of their assets each year, mostly as grants to 501(c)(3) public charities.

Foundation websiteAll filings on ProPublica

Does Spinal Muscular Atrophy Foundation accept grant applications?

No. On its 2024 Form 990-PF the foundation checked that it only makes contributions to preselected organizations. Look for an introduction through a current grantee.

How much does Spinal Muscular Atrophy Foundation give each year?

In tax year 2024 it paid $1.5M across 11 grants, a median of $141K.

Where does Spinal Muscular Atrophy Foundation give?

California (5 grants), INTL (2 grants), Maryland (1 grants) and elsewhere, per its latest filing.

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